CSL Behring Delivering on Promise to Alpha-1 Patients at ERS

Global biotherapeutics leader CSL Behring will host a patient-focused symposium about Alpha-1 Antitrypsin Deficiency (AATD) on Monday, 30 September, during the 29th International Congress of the European Respiratory Society (ERS) in Madrid.  ERS is the largest meeting of respiratory professionals in the world and features a scientific and educational programme designed to address the needs of researchers, clinicians, and health professionals.

The “Living with AATD: Empowering Patients and Healthcare Professionals” symposium will be co-chaired by researchers and pulmonary specialists Robert Sandhaus, MD, PhD and Charlie Strange, MD.  The program will address differences in acute exacerbations in COPD and AATD, the benefits of pulmonary rehabilitation and will offer several perspectives on Alpha-1 Antitrypsin (AAT) self-administration. In addition, Karen Skålvoll from Team Alpha-1 Athlete, and pulmonary and rehab expert physician, Rembert Koczulla, MD will highlight the benefits of exercise training in AATD and the impact on quality of life. 

Karen comments, “Being able to self-administer my therapy gives me the freedom that I want and empowers me to exercise regularly and travel the world raising awareness of Alpha-1.”

CSL Behring will also host an exhibition booth (t.07) where visitors will be encouraged to participate in the “Donate Your Steps – Walk for Alpha-1” programme by contributing steps walked during the congress for CSL Behring to convert into a monetary donation to Team Alpha-1 Athlete, a sports team working to raise awareness about lung disease and AATD.    

In addition, the poster “Relationship Between Alpha-1 Antitrypsin Deficiency and Ascending Aortic Distention” (Friedrich Kueppers, Farouk Dako, Huaqing Zhao, Alexandra Mulvenna, Seen Gupta, Scott Simpson), summarizing research supported by CSL Behring, will be on display during the congress. 

Source: CSL Behring

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